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Ntando Yola

Networking HIV/AIDS Community of South Africa (NACOSA) - 2013 Fellow

Ntando Yola has worked for 8 years in HIV prevention research at the Desmond Tutu HIV Foundation (DTHF) in Cape Town. In his role as a Community Engagement Coordinator he has worked closely with various national and international HIV prevention Networks. His work has involved working with various community stakeholders, developing and implementing community education programmes, forming partnerships with health service providers and other community based organizations as key stakeholders HIV prevention research. His works is driven by an interest of effectively engaging and involving communities and see them take ownership as part of achieving an end to the AIDS epidemic through an opportunity presented by HIV prevention clinical trials. He has been part of the formation of Community Advisory Boards of Masiphumelele and Nyanga townships where the HIV vaccine, microbicides, Pre Exposure prophylaxis and other trials are taking place.

Fellowship Focus: In his fellowship, Ntando focused on facilitating the development of strategy for national stakeholder engagement in clinical trials for South Africa. He used the Good Participatory Guidelines as the framework on how research teams including sponsors engage communities during the process of clinical trials. This involved consultations with key stakeholders which included communities where trials take place, HIV prevention advocates, ethics committees, policy makers and national government. He also looked at key ethical issues in the conduct of trials such as post-trial access as well as commitment by researchers and government, as well as on influencing changes in necessary policies and guidelines in consultation with key stakeholders. He sought a consolidated approach towards continuing stakeholder engagement, during and beyond HIV prevention clinical trials.


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